Low Level Light Therapy And Dysautonomia/POTS After Suffering Severe QoL Issues for Over a Decade - The Power of Light
After suffering a traumatic brain injury with diabetes insipidus, a vertebral artery dissection and POTS, I also had Mal de DeBarquemont Syndrome and walked like a drunk sailor. I woke up and threw up
If you have been pregnant and suffered from morning sickness, you know what it feels like to wake up and … throw up. I don’t have to describe that awful feeling to you.
After being hit at 90 degrees at about 90 mph while waiting for a red light to change to green and going 20 mgh, I had much time to reflect on what happened, how it happened, and what to do to get better.
To be exact, I had 12 years to think about it, to live it, and to get myself the heck out of it.
People ask me,
“What was it like?”
How did you do that?
Almost everyone says they could not do twelve years in bed. But I look at them in the eyes and I say to them,
You could do it.
Anyone could do it… because you have to do it. There was no choice.
What Was It Like to Have Dysautonomia?
It was a horrific. It was a terrible quality of life.
I stood up - and then I fainted.
Or I stood up and got so dizzy that I had a “gray out” where my visual field was about to go black … I could feel myself about to faint, that “pre-syncope”, and invariably, my gag reflex lit on fire and I began to throw up.
I hate throwing up.
There are so many things I cannot stand about it, that I don’t even want to describe it.
(*I breathe deeply*)
I try to dispel the thought of throwing up before I think about it too hard, lest I start feeling it again.
At its worst, about 15 years ago, my blood pressure was probably 90/45 mm Hg and occasionally it went down to 78/35 mm Hg with a heart rate over 100 beats/minute.
Taking a shower was impossible; the hot water would dilate my arteries and redistribute my blood away from my brain. It would suck my energy to nothingness.
Slowly, slowly, I would sink down on to the shower floor.
But the thing that worried me the most about throwing up was that I also had an artery in the back of my neck that ripped in the car accident, (i.e., a dissection or the vertebral artery).
Every time I threw up, the gag and the vomiting increased the pressure in my brain, and that artery could rip.
I also had an aneurysm ballooning out from the dissection, so I had to be careful that it didn’t get bigger, and of course, that it didn’t burst. Oh…
… I worried that if I threw up too much or too hard, the blood thinner I was on would make me bleed to death. Why was I on a blood thinner? Because that aneurysm or out-pocketing of the ripped artery could hold a blood clot, and then I could get a stroke from a blood clot.
You see my predicament… clot or bleed, vomit and rip. For twelve years, I lived with that danger, as well as being completely bedridden and unable to stand up by myself.
I was in a wheelchair for three years, then a walker for three years, then a cane. There was plenty of time I could not transfer from the wheelchair to the car, and I needed a lot of help.
Unheard Of
Dysautonomia presents itself with certain symptoms, but the fainting or syncope, plus the “near-syncope” were so rare that no doctor had heard of it.
I write about this in my original book, The Rebel Patient: Fight for Your Diagnosis. It was a SHAME how ALL the doctors all assumed I was pretending, faking it for … more attention? Ha!
What greater amount of attention could I receive, than walking around the hospital in my high heels?
Expertise on Dysautonomia/POTS
How much do I know about dysautonomia? While I was sick, I wrote, participated in, or did videos on these:
I have participated in a grant total of about 204 articles or videos (two were on pain management) on dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS).
… Just to let you know I lived it.
I list these not to brag about my clinical acumen, but to tell you how I suffered.
My Substack Articles
Please do read my articles on POTS - especially if you get dizzy when you stand up.
The diagnosis of POTS:
The treatment of POTS:
Most Ridiculously
And most ridiculously, the attitude of the doctors was that…
“If I Haven’t Read About It In A Book…”
“If I haven’t heard about it,”
their attitude was,
“… It Doesn’t Exist.”
End of Story.
“You’re faking it!”
I took blood pressure medications every 4 hours to push my blood pressure UP. After taking HYPERTENSIVE medications, I had to be careful not to fall asleep on it, or my blood pressure could go so high that I could die of a bleeding stroke in my sleep.
It was a delicate life.
If I turned right, I could die. If I turned left, I could die.
It took compression stockings, a high salt diet, hypertensive medications, and just the right conditions to stand up, even for a minute.
Pushing On and On
I pushed on, believed God for a miracle, and began walking in 2018.
I pushed on.
And a couple weeks ago, I told you that I visited Dr. Len Saputo’s medical clinic and learned low-level light therapy (LLLT). The most beautiful thing about seeing so many miraculous things happen with the LLLT was that Dr. Saputo treated me with the light.
I felt better during that week, maybe less orthostatic on occasions like when I had to reach down and pick something up from the floor.
Now that a couple weeks have gone by, I gradually noticed that I can do more. I can stand up quickly without a tinge of any effects, and I suddenly stopped craving constant drinks of water. I thought it was normal to want to drink lots of water, even to the point of sleeping with a glass next to my bed for fear of waking up thirsty.
For the first time in over fifteen years, I don’t “need” any fluids next to me. I don’t “require” a cup or pitcher of water next to me, as if it was my Teddy Bear I couldn’t live without.
Healing That One Last Bit
I didn’t realize I needed to heal that one last bit. I just thought it was normal to have water with me everywhere.
Now that I don’t have to have water next to me like a Teddy Bear, it is not only relieving to be without that final ball and chain, as minute as it was. It is refreshing to realize I got even better from LLLT.
What would have happened if I had the LLLT 15 years ago? I have every reason to believe that I would have recuperated sooner, and it would have been quite the recovery.
Healing that one last bit has taught me how much I accepted the need of constant water. Now that I no longer “need” it like before, it is a newfound freedom, a huge quality of life issue, and a welcome relief.
Light
Pretty soon, I will do more in depth studies on LLLT and bring them to you. I look forward to giving you information on something that can heal noninvasively (no needles!), without a Big Pharma drug, and with something that is so ubiquous, light.
There must be something to light that we have missed in mainstream medicine. After all, everything needs light: humans, animals, plants, and fish. And God’s first words in the creation of the world were,
“Let there be light.”
MEDICAL WEBSITES
* Hospital Hostage Hotline: 888-C19-EMERGency and ProtocolKills.com - Donate
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* Report a Sentinel Event: https://www.truthforhealth.org/report-sentinel-event/
* File a Criminal Complaint: https://www.truthforhealth.org/2022/02/how-to-file-a-criminal-complaint/
* File a Hospital Complaint with the Joint Commission: https://www.jointcommission.org/resources/patient-safety-topics/report-a-patient-safety-concern-or-complaint/
* How Bad Is My Batch: https://howbadismybatch.com/
MEDICAL FREEDOM LINKS - TAKE ACTION AND SIGN
This is the time to band together as Americans to stand up for our rights
What is my next step?
1. NEW! Join Drs For Choice to obtain and disseminate to the public the data from the free-text fields in the CDC’s v-safe database. https://drsforchoice.org/
2. Stop the WHO From Taking Away Our National Sovereignty: https://alignact.com/go/stop-the-who-from-taking-away-our-national-sovereignty
3. Email and Call Every Congress Member To Tell Them to Exit the WHO: https://alignact.com/go/exit-the-who
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5. Send a letter to your State's Attorney General. Ask them to do their job and protect those they have sworn an oath to protect. Demand they convene a grand jury and bring criminal indictments against the perpetrators. https://10letters.org/
6. Visit AlignAct.com to Sign a Petition to Your Congress and get a Medical Freedom Act in the works: https://alignact.com/go/medical-freedom-act
7. File a Medical Board Complaint for Harm in Your State. A Voice for Choice Advocacy makes it easy for all 50 state medical board complaints: http://www.neglectreport.com/
8. For Health Care Professionals: Take Steve Kirsch’s Survey If you work in Healthcare. https://airtable.com/shrQZWaacOu9j2rhh?utm_source=substack&utm_medium=email
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